Hello everyone. I can't believe it is April already. Sydney turned 32 last week and Kendall will be 17 yrs old on April 17th!!!!! She absolutely loves singing and karaoke(this is when she is the happiest). We have planned a karaoke party for her on Saturday. For now keeping it as a small group due to her immune system. She had a cardiology appointment today. EKG and ECHO(ultrasound of the heart) was stable. Also had a ton of blood drawn for cardiology and oncology. ( I coun

Quick update: CT scan done on Mar17th Scheduled appointment with Oncologist after CT scan went well. No changes in medications. Kendall has had cold(stuffy/runny nose and cough) for a week or so. No fevers though and she feels good. --- -However the appointment on the 20th with the spleen specialist(hematologist) to go over results was canceled and rescheduled until next month( not our doing). The doctor needed to reschedule until April 17th) her 17th birthday. It seriously b

Hello everyone. Kendall has had a few appointments since my last post. Heart cath was done on February 18th. They went through the right carotid artery on the right side of her neck for the cath. The pressure(s) in her heart are stable and the ECHO looked good. On Friday February 20th the transplant nurse practitioner called and said the results of biopsy came back "mild" rejection. She said they really don't know if the rejection is because the heart is healing from the last

On my last post I stated Kendall had a heart catheter procedure on Friday January 16th. On Tuesday January 20th I received a call from the transplant team stating there was some moderate rejection cells in the heart biopsy and they wanted her to be admitted into the hospital ASAP to begin a steroid regimen. It's crazy because there were no clues looking at her to tell what was going on in her body. So we got to the ER around 3p and this started Day 1 of a 3 day IV steroid tre