How it all started

When I was pregnant at 19 weeks I found out my unborn child had a severe congenital heart condition.  The condition is called Hypoplastic Right Heart Syndrome (HRHS).  We were told she would require open heart surgery right away "if" they would be able to do surgery at all.  Every 2 weeks for the rest of the pregnancy I followed up with the specialists to see if there was any changes or improvement with her condition.  Her right ventricle in her heart did not develop so she did not have the chamber that pumps the blood to one of her lungs.  With this condition the left lung is also underdeveloped because of the lack of blood flow from the heart.  Kendall was born with hypoplastic right heart, pulmonary atresia and tricuspid atresia. She has had 4 open heart surgeries, a cardiac arrest, a stroke and as many as 27 airway dilation/laser procedures on her trachea as a result of being on the ventilator so many times.

 

There are many things she has endured between now and then. This website and this book was created so that people of all ages can see the amazing things she has overcome.  It is to give hope and inspiration to never give up, especially to children.  Going to the hospital, having surgery and living with a disease doesn't have to define your future.  You are stronger than you know.  When the doctor says no, God says yes.