Hello everyone. Kendall is doing really good at home. Feeling better, walking better, eating/drinking better.
Her last blood draw was last week Thursday. Her Tacro level (anti rejection med) was high. The normal range they want it in is 10-12. 2 weeks ago it was low at 7.9 and she had to go up on her medication dose. Last week it was high so we went back down on the dose(4mg/day). I am waiting for a call back from the team to go over the Epstein Barr virus and C. diff results from the stool sample.
-Wednesday blood draw will be done at U of M lab in Ann Arbor early morning. We decided to take her there because if they can’t find a good vein to draw her blood from after 2 pokes, they can call the IV team to come and do it with the help of the ultrasound device. Also we will have one of the Child Life Specialist there to help talk Kendall through it and give her some distraction techniques.
-Wednesday @ 1:15p she has a zoom with the physical therapist from the school district
-Wednesday 4pm follow up zoom with the psychologist
That’s all for now.
Have a great day…
#TeamKendall
#BeKendallStrong