Last week Kendall’s tacro levels were still high so we went down to 3mg/day on her medication.

She has been walking up and down the stairs without help. Also taking short walks outside without needing to stop and take a break.

GI appointment yesterday- will have an upper scope and colonoscopy in the near future

Oncology/Hematology- had appointment here today. we were referred to this speciality because of the high Epstein Barr Virus levels. They will continue to watch her levels weekly and treat accordingly. We were given a bunch of symptoms to look out for and will order tests based on symptoms, blood work, and infectious disease doctor recommendations.

Wednesday- virtual appointment with infectious disease doctor

Thursday- blood draw at U of M main campus. Then appointment with new primary care doctor which is about 15 minutes from hospital.

Friday- Swallow test re-evaluation at U of M

I will keep you posted at the end of the week after all appointments are completed.

Overall, she is feeling well, in good spirits, and is adjusting to her new responsibility of knowing when her medications and inhalers are due to be given. She has lost 20 pounds since her first admission to the hospital. It’s all good though. She has lost a lot of water weight and her swelling has gone down so much. She even needs a new wardrobe because all of her clothes are too big. You already know she is excited about that part. Lol

I will be posting this weekend(don’t hold me to it) to update you all on the the rest of this weeks appointments!!!!

Thank you all for continuing to follow her miracle journey

#TeamKendall

#BeKendallStrong