What a difference 7 days can make. There is a lot that I will leave out but I will give you the main points.

PICC line was placed successfully but afterwards her blood pressures were very low so she had to stay in recovery a little longer. They think it was a combination of the Milrinone, Sildenafil, and the IV sedation she received during the procedure. After a few hours she was cleared to return to her room.

-Heparin(prevents clots) was started. They increased her Milrinone and then her status was upgraded and changed to 1A which is high priority on transplant list.

-iron levels became low. 2 blood transfusions were given. and also Iron IV. GI consultation done to figure out if there was any internal bleeding before they would consider even doing a transplant for safety reasons. . Decision was made to do an upper GI scope.

-cardiologist put transplant on hold status until further tests done(she will not lose any time that she has accrued.

-scope was done yesterday and there were no signs of bleeding. There were a few areas of irritation so IV acid reflux medication was started.

—iron levels improving. Getting Physical and Occupational therapy. Music therapy(just had her heartbeat recorded and they will put it on a flash drive and inside of a stuffed animal. I love that.

-Heparin off. Getting Aspirin instead.

She is in very good spirits. Feels great. Been walking in the hallway. Currently with PT in the gym. Has been praying, coloring, playing nintendo switch, crossword puzzles, word search, Ipad etc…there is always something to do here. The educator stopped by today and is going to be available to help with lessons if needed once virtual learning has started.

Definitely had some setbacks but she had more WINS!!! Everything is happening in the order it is supposed to so her body is more prepared when the transplant actually happens.

God is good

Thank you again for your continued support and prayers. Keep it coming…..

#TeamKendall

#BeKendallStrong