Kendall had a trip to ER early Sunday morning. She was having cold-like symptoms( stuffy nose, runny nose, sore throat, head congestion, cough). Congestion to the point where she couldn’t blow her nose and couldn’t breathe through her nose at all and could only mouth breathe. I checked her oxygen level and it was like 83-84%.(her normal is high 80s low 90s). With everything that has been going on with her I took her to Children’s Hospital where all of her doctors practice out of. I can’t even explain the irritation frustration I had/have because of the care that she received. I explained the current situation with heart/lung because of what could happen if she was sick at this time.

Recap: She had pneumonia last year at the beginning of 2020 and was finally admitted after the 2nd ER visit in 24hrs. She was very sick.

Sunday she had a chest xray done and the radiologist said it was “possible” pneumonia but the ER doctor disagreed. They said it was a viral upper respiratory infection and it had to run its course. All they would give her was some nasal spray and told me to get a freaking nedi pot to use at home. Then she was discharged home.

Because no other tests were done(and no one was taking me serious) i could not wait for the sun to come up so that I could call her pulmonologist. I told her what was going on and that they would not do any other tests that I requested because of her history. The Dr agreed with me and ordered antibiotics to treat her for possible pneumonia to be on the safe side. She had a fever on Sunday but nothing since then. We increased the vest therapy to 4 times a day(a machine that has a vest she wears and it pretty much shakes her chest and back to loosen up secretions). She is using 1 inhaler 2X a day and another inhaler 4X a day. Monday-She is feeling much better and congestion is 90% better.

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